Showing posts with label Elvis Costello. Show all posts
Showing posts with label Elvis Costello. Show all posts

Thursday, August 20, 2009

Now that's what I call service


I had planned to meet a friend in Los Feliz on Tuesday night so we could walk together up the hill to the Greek Theatre for the Elvis Costello show.

The Greek is just a short hike from the the intersection of Vermont Avenue and Los Feliz Boulevard, but my buddy told me to make sure I was well hydrated. After parking my car on a side street off Vermont, I sent a text message to him to let him know I was going to sit in my car long enough to slam a bottle of water and a liquid Extra-Strength Tylenol chaser into my belly before meeting him on the corner.

I poured the Tylenol into the measuring cup and placed it on the dashboard, and unscrewed the bottled water. Then I opened a few buttons of my shirt and pulled out the G-tube, drawing some curiosity from a woman walking her dog on the sidewalk.

The dog yipped a few times and the woman looked at me funny. I can't imagine what she thought but a man feeding himself with a G-tube may not be the element that she wanted to see in her neighborhood. But hey, I wasn't the one pooping on the sidewalk.

The woman hurriedly moved on —possibly to ring Chief William Bratton's doorbell— and I starting digging around in my backpack for my syringe so I could get the fluids down the tube and meet my buddy.

In my backpack, I found loose change, a few unpaid bills and a packet of mayonnaise from 2008, but no syringe. I left it behind on my desk at the office.

Driving back to the office or going home to get another syringe wasn't a practical option —both destinations were at least 10 miles away and I didn't want to miss Elvis' opening act. Then I remembered that there was a service station with a small market at the corner of Vermont and Los Feliz.

Surely the service station would sell me a plastic funnel that I could use to pour my fluids into my belly, I thought.

I scampered up the hill toward the service station. After spotting my friend sitting in the grass waiting for me across Los Feliz, I shot a text to him to let him know that I needed a few more minutes.

I walked into the service station market and scoped the shelves for a funnel. There was a rack of motor oil, but no funnels to use for pouring it.

I opened my note pad and drew a sketch of a funnel. Below the drawing, I wrote "You sell these things here?" and handed the note pad to the attendant behind the counter.

He stared at my drawing, took a glance at me, then looked again at the sketch. Then a broad smile came to the attendant's face.

He took an empty Marlboro carton and tore it in half. Then he shaped the cardboard into a cone, and punched a few staples into it to hold it together.

I could tell just by looking at it that the tip of the cone wouldn't fit into my G-tube. Even if it had, the home health nurse who told me to use my G-tube only in sterile environments would be appalled if she knew I would even consider contaminating my tube with cardboard that was laying around on a service-station counter. But I was certainly impressed by the attendant's ingenuity, and I hope you are, too.

I accepted the makeshift syringe, gave the attendant a buoyant thumbs up and walked out the door.

If he had known that I needed it to shoot fluids into my belly, I bet he would have called on Chief Bratton, too.

Thursday, August 6, 2009

Meanwhile, back on the HIV front . . .


If I had teeth, they would have been clenched tight when I clicked on the email I received from Dr. B1 early Wednesday morning.

Results from last Friday's biopsy were promised by Wednesday and I wasn't eager to get any bad tidings from my doctor. But even as I opened the email and read the words "Good news," my reaction fell short of unbridled joy.

Dr. B1 was telling me the best news I could have possibly expected to hear, but there was a cloud beneath that silver lining.

The night before, while poking around in my online medical records at Kaiser's member website, I saw that my latest HIV lab results were available. I clicked on that email and scrolled through the numbers. They didn't look good.

As I've been grappling with this cancer offensive, it looked as if my HIV had been running amok. According to the lab results posted online, my CD4 count had taken a deep nose dive, plummeting to 80 from more than 400 just seven months earlier.

I nervously clicked out of the lab results and sent a message to HIV provider: "My HIV numbers don't look very good," I wrote. "What do you think?"

The next day brought the good news about the biopsy, but my HIV situation weighed heavily on my mind.

Later that morning, my HIV doctor sent a reply to my email: "Your HIV is perfect," he wrote. "The HIV viral load is less than 48 copies, indicating complete suppression of the virus by the medications. Your overall 'infection fighting cell' number (WBC) remains slightly below your baseline, likely due to a residual effect of the chemotherapy. This is normal. It is not by any means at a critically low level. Because of your lower WBC numbers, your absolute T cell number is lower. However, the percentage of T cells (19 percent) is virtually unchanged from the values in January (18 percent).

"In other words," my HIV doc concluded, "your HIV is exactly the same, still doing great."

The lesson here is to let my doctor interpret my lab results before I leap to any conclusions.

So with HIV laying low, and cancer apparently having flown the coop, I can concentrate on my recovery while watching the undetectables, to paraphrase that doctor of rock 'n' roll, Elvis Costello.

It may still be some time before I can shed my trach and G-tube and talk and eat and drink through my mouth again —and there remains a possibility that the damage caused by cancer and radiation will be permanent— but I've come this far and I'm prepared to go the distance.