Friday, August 7, 2009

What's cooking?


Is it my imagination, or have the sunrises been a little pinker and the sunsets a tad rosier these past few days?

I've been twirling my G-tube like a gold chain from a zoot suit ever since Dr. B1 announced that radiation and chemotherapy spooked the cancer out of my system.

Cancer could return for a rematch, so I'm savoring my clean bill of health for as long as it lasts, and I hope that will be a very long time. As for now, Kool and the Gang's "Celebration" is clanging in my ears.

A dear friend in Florida joins me in my happiness by wishing me a weekend of "trashy movies or a long walk up and down the aisles of Amoeba buying that rare music find."

Hey, I can do that.

The Amoeba visit is a no-brainer: Today is payday. But even if it wasn't, my car's wheels intuitively turn into the driveway to Amoeba's parking lot every night when I pass the store on the way home from work. And it won't be long before I'll be spinning into Amoeba on my bicycle again.

As for the trashy movies, maybe I have a screw loose but I'm excited about seeing "Julie & Julia," Nora Ephron's film about Julia Child, starring Meryl Streep and Amy Adams, which opened today.

Yes, I know that most grown men would not be caught dead in a theater showing the food porn movie of the century, especially one that is opening opposite "G.I. Joe." I don't understand my attraction to this film. I can't even spell "soufflé" without first looking it up on Wikipedia.

What's even stranger is that I'm guessing that I am the only man in America with a G-tube who will pay to sit through a two-hour movie about one woman who wrote a landmark cookbook and another woman who attempts to cook all 524 recipes in that book in the course of one year.

The only "cooking" I enjoy these days is what I pour out of a tin can. I doubt that even Julia Child could craft anything palatable from the high-calorie, high-nitrogen, vanilla-flavored runny goop that Nestlé calls Isosource.

In these post-cancer days, anything tastes good to me even though all of it bypasses my taste buds.

Now if you'll excuse me, my tummy's rumbling. One chick flick coming up.

—

10:30 p.m. update: "Julie & Julia" can wait a day or two. Found a used "Tootsie" DVD at Amoeba for $2.99.

Thursday, August 6, 2009

Meanwhile, back on the HIV front . . .


If I had teeth, they would have been clenched tight when I clicked on the email I received from Dr. B1 early Wednesday morning.

Results from last Friday's biopsy were promised by Wednesday and I wasn't eager to get any bad tidings from my doctor. But even as I opened the email and read the words "Good news," my reaction fell short of unbridled joy.

Dr. B1 was telling me the best news I could have possibly expected to hear, but there was a cloud beneath that silver lining.

The night before, while poking around in my online medical records at Kaiser's member website, I saw that my latest HIV lab results were available. I clicked on that email and scrolled through the numbers. They didn't look good.

As I've been grappling with this cancer offensive, it looked as if my HIV had been running amok. According to the lab results posted online, my CD4 count had taken a deep nose dive, plummeting to 80 from more than 400 just seven months earlier.

I nervously clicked out of the lab results and sent a message to HIV provider: "My HIV numbers don't look very good," I wrote. "What do you think?"

The next day brought the good news about the biopsy, but my HIV situation weighed heavily on my mind.

Later that morning, my HIV doctor sent a reply to my email: "Your HIV is perfect," he wrote. "The HIV viral load is less than 48 copies, indicating complete suppression of the virus by the medications. Your overall 'infection fighting cell' number (WBC) remains slightly below your baseline, likely due to a residual effect of the chemotherapy. This is normal. It is not by any means at a critically low level. Because of your lower WBC numbers, your absolute T cell number is lower. However, the percentage of T cells (19 percent) is virtually unchanged from the values in January (18 percent).

"In other words," my HIV doc concluded, "your HIV is exactly the same, still doing great."

The lesson here is to let my doctor interpret my lab results before I leap to any conclusions.

So with HIV laying low, and cancer apparently having flown the coop, I can concentrate on my recovery while watching the undetectables, to paraphrase that doctor of rock 'n' roll, Elvis Costello.

It may still be some time before I can shed my trach and G-tube and talk and eat and drink through my mouth again —and there remains a possibility that the damage caused by cancer and radiation will be permanent— but I've come this far and I'm prepared to go the distance.

Wednesday, August 5, 2009

Happy news


Dr. B1 just sent an email that makes me very happy:

"Dear Mr. Serchia: Good news. The biopsy showed no evidence of malignancy. That means at this point, we cannot see any more active cancer cells. The biopsy did show granulation tissue and inflammatory cells, which is likely a side effect of the radiation therapy. We will have to continue to watch that area as it is healing."

Thank you to everyone who has been hoping for this outcome all along. More later.

Tuesday, August 4, 2009

Retired in the U.S.A.?



My copy of the September-October issue of AARP: The Magazine arrived in Monday's mail, and sexagenarian Bruce Springsteen is its cover boy.

Based on the photo, I don't see any evidence that the Boss is shifting into geezerhood. Bruce's pants look just as tight as they did in the photo on the "Born in the U.S.A." sleeve 25 years ago. And the profile inside the magazine shows that Springsteen is as busy as ever, even if his on-stage leaps may not be as high as they were in 1984.

I'm still getting used to the World According to AARP. Once you reach the half-century milestone, you become bait for a feature in the AARP magazine, and the editors do love splashing celebrities on their cover. I'm relieved that AARP didn't hop aboard the Jacko bandwagon this month.

Still, it's a bit disorienting reading about Bruce Springsteen and flipping past full-page ads for Depends.

Monday, August 3, 2009

Lockdown in recovery


So Kaiser would know that they were performing a biopsy on the right guy on Friday, the clerk in the Admitting Department asked me to show my Kaiser enrollment card and my ID, and I had to make a $15 copayment, which I charged to my debit card.

Then I was told that I would not be allowed to carry my Kaiser card, my ID, my debit card or any cash with me into the ward where I would await surgery.

My plan was to slip my wallet into one of my sneakers and stuff my sneakers in the large plastic bag that the hospital provided for my clothing, along with a biography of Woody Allen I brought along to read.

No way, José, Jessica in Admitting told me.

I scribbled a note asking Jessica what options I had. She gave me two: I could hand over the items to a family member or friend, or she would store them for me in Kaiser's safe until I was discharged.

I arrived at the hospital alone Friday morning, and none of the people I saw hanging in the waiting area to the Admitting Department looked trustworthy enough to hold on to my Kaiser card, ID and debit card for the day. So I surrendered everything to Jessica, along with two $5 bills and five singles.

Jessica fished an envelope and a form out of one of the drawers in her desk. One by one, she documented on the form what she was placing in the envelope. She saved the cash for last, and counted the bills at least five times.

I should have sensed that Jessica wasn't the type of gal I could joke around with. But I tried anyhow. After she counted my 15 bucks for the third time, I wrote "Hey, I'm loaded!" in my note pad and held it up for her to see.

Jessica didn't smile. I almost thought that she was going to dig around in her desk for a Breathalyzer.

Then I was led into the hospital to prepare for surgery.

In the early afternoon, I woke up in the recovery room. The procedure had gone well and my vitals were stable, so the nurse said that she would call a friend of mine who offered to come pick me up to take me home.

My friend was at work in Pasadena, so I cracked open my book on Woody Allen to await his arrival. I asked the nurse if she could get my Kaiser card, ID, debit card and cash out of Kaiser's safe so I could leave as soon as my friend arrived.

About 15 minutes later, the nurse returned to my bedside. "Bad news," she said. "We can't get the safe open."

I looked at her blankly.

"We're trying to get it open," she assured me. "We're thinking of calling a locksmith."

The nurse disappeared again. Meanwhile, my friend showed up.

He had already been briefed about the problem with the safe, so he told me he would go downstairs and get a bite to eat and wait for the situation to be resolved.

Some time passed, and the safe was still jammed. My friend decided to head back to his job in Pasadena to wait for Kaiser to summon him back.

I dozed off reading about Woody Allen's growing up on Coney Island. Then I was stirred awake by a woman wearing a business suit and a badge. She appeared to have some authority.

"We're still working on the safe," she explained. "But it may take till Wednesday till a locksmith can open it."

"Wednesday?!," I wrote in my notepad. She nodded. I guess Kaiser's brand-new flagship facility was a $600-million fixer-upper.

More time passed. I tried to relax and read, but I kept thinking about how agitated Woody Allen would be in a situation like this.

Hours went by. The next thing I knew, I looked up and saw a nurse, the supervisor and a locksmith named Larry standing at the foot of my bed. From the beaming expressions on their faces you would have thought that they had jointly discovered the cure for cancer and wanted me to be the first one to know.

"Good news!" the supervisor exclaimed, holding up the envelope with my belongings.

My friend had already been summoned back to the hospital to take me home, making his second trip to Hollywood from Pasadena.

As we sat in rush hour traffic, I wrote a note apologizing for all of the time he spent away from his desk. I asked him what projects he was working on and he said that he was part of a team working on collecting samples from a comet expected to be passing by Earth in 2027.

Some people think that comet may actually collide with Earth. Maybe my friend is working on a mission to save the planet from destruction, and he downplayed the significance of his work to me, figuring that I had enough to worry about as it is.

I hope that the time my friend spent away from that project on Friday doesn't put that project behind. If that comet wipes out Earth, I'm gonna feel personally responsible.

Sunday, August 2, 2009

A sudsy summit


Cancer wants to have a beer with me.

His invitation popped up as a text message on my cell phone while I was driving around town on Saturday. Creeped me out; it really did. Almost made me crack up the car! I pulled over and parked to make sure that I read the message correctly.

Seems fishy, coming on the heels of the fiasco in Cambridge and Obama's "teachable moment" with that cop and Skip Gates.

Does it sound like a trap? Is this some kind of clever marketing gimmick, a mass text message sent to thousands of people at the same time? City of Hope and Kaiser have been doing a lot of radio buys recently, so maybe this is Cancer's way of striking back. I imagine Cancer would have a hard time buying a spot on KNX-AM, even with the Fairness Doctrine and all.

Or maybe this text message was directly solely at me. I have been dissing Cancer a lot in this blog. Maybe Cancer wants to give me his spin on what I've been spewing.

Or maybe Cancer wants to go mano a mano.

Call me crazy, but I'm tempted to take the bait. It would be quite a beer date. I'm confident that I can handle any questions Cancer has for me, and this would give me a chance to get Cancer on the record about things that I want to know.

At the top of that list: Dude, are you still in me or not? And if you are still lurking in me, when are you gonna pack it up and leave?

Oh, and I would love to see Cancer's reaction as I unbutton my shirt to pour my brew into a syringe attached to my G-tube.

Still, I don't want to act hastily. After almost 20 years of kvetching publicly about HIV, I've never gotten invited on a beer date with AIDS.

So it just seems odd.

I sat in my car, reading the message over and over, while tapping my fingertips on the dashboard. I didn't want to blow Cancer off right away, and risk pissing him off. Cancer went to the trouble to text me; Cancer deserved a timely response. So I hit Reply, and texted back to him:

"OK with U if I bring along Joe Biden?"

I'll let you know if I hear back.

Saturday, August 1, 2009

Under the knife again


Maybe Dr. B1 defused bombs for the Army in Baghdad before he took up head-and-neck surgery.

Because it could not have been easy on Friday in Kaiser's operating room for Dr. B1 to get his delicate instruments past my steel-trap jaws and deep enough into my kisser to capture some of the suspect tissue that lurks there.

If you want the Cliffs Notes version of today's post, here it is: T.G.I.Saturday.

I'd been jittery about how Friday's surgery would go ever since I learned early this month that another biopsy was in my future. While I won't know the results of my biopsy till next week, the procedure went well.

I remember the whole experience with Friday's surgery in stark, high-definition clarity —all the way up to the very beginning, that is.

What I mean is: I remember boarding the Red Line in Universal City shortly after 5 a.m.; I remember getting off the train at Sunset and Vermont; I remember trying to maneuver around a cyclist on the escalator ("I can't move!" he barked, a minute before he and his bike magically regained the miracle of movement at the top of the escalator); I remember walking through the doors of Kaiser's brand-new, $600-million medical center for the very first time; I remember checking in at the admitting department; and I remember asking a pregnant woman to move a sweater so I could take one of the last remaining seats in the waiting area.

I remember getting a plastic band wrapped around my wrist; I remember stuffing my clothes into a plastic bag and donning the standard-issue cap, gown and hospital booties; I remember the nurse unfolding a blanket fresh with warmth from the dryer over my body; I remember her thumping the back of my left hand so she could get a vein for an IV; I remember being interviewed by a steady parade of anesthesiologists and others on my doctor's team; I remember being asked for my name and birth date at least a dozen times.

I remember Dr. B1 stopping by my bed to greet me and review my charts, shaking my hand to say hello and squeezing my toes to say goodbye.

And finally I remember one of the nurses telling me that the medicine that she was feeding into my IV would help me relax. She then brought up the metal rails on my hospital bed and, with help from one of the anesthesiologists, pushed me down a series of winding corridors toward the room where my surgery would take place.

That last scene I've watched a million times on "E.R.," except the irony is, I've never seen a single episode of that show. (If I had mentioned "Ben Casey" instead of "E.R.," some of you might have clicked away to a blog by a younger, hipper cancer victim.)

I remember thinking that the ride in my bed to the operating room was taking too long, but maybe the nurses just push the bed aimlessly around the floor until they know that I am asleep. Because I don't remember entering the operating room. My next conscious memory is opening my eyes in the recovery room, having my vitals taken by the nurse who still thinks I resemble Ben Stiller. Maybe it's a Jew thing; that nurse kinda resembles Julie Kavner.

Dr. B1 says that he won't know the results from the biopsy till Wednesday, so I'm looking at several days of biopsy news hanging over my head.

I have plenty to do to keep me busy in the meantime. Seems like the anesthesia is affecting my ability to pee again, so baby-sitting my bladder and taking Flomax is priority No. 1 (I've used that pun before and I'm not ashamed to use it again).

Darning socks is the next task on my list.

The next time a doctor or anyone else feels like squeezing my toes, I may not be wearing brand-new baby blue hospital booties. I better be prepared.